We have previously reported on the INTEGRATE-HTA project in the ScHARR blog. INTEGRATE-HTA is an innovative project that aims to developing new methods for the assessment of complex technologies and applying these in a palliative care case study of home based palliative care.
A number of stakeholders have assisted in the application of the new methods to palliative care in England as part of this European project co-ordinated by the University of Bremen in Germany and led in England by Professor Liddy Goyder, ScHARR. Patient and public involvement (PPI) representatives (i.e. patients, carers, ex-carers and members of the public with an interest in palliative care) from the Sheffield Palliative Care Advisory Group (PCSAG) (chaired by Dr Louise Brereton, ScHARR) and the North Trent Cancer Network Consumer Research Panel (NTCN CRP) have taken part as advisors to the INTEGRATE-HTA project. PPI representatives have participated in meetings with commissioners, health professionals (practitioners, including with experience of home care services), and academics with an interest in palliative care to provide their perspectives on issues relating to effectiveness, cost-effectiveness, socio-cultural, patient preferences and factors influencing treatment effect.
Six PPI representatives (patients and carers or ex-carers, one of whom is also a patient) and 13 professionals from a variety of disciplines have participated between March and June 2015. PPI representatives based in Sheffield and professionals from St Luke’s Hospice and Sheffield Teaching Hospitals and have had face to face and Skype meetings with a number of our European research partners. They met with Dr Kati Mozygemba from the University of Bremen, Germany (PPI representatives at a Sheffield meeting and professionals by Skype) to consider socio-cultural issues in home palliative care, whilst Dr Marcia Tummers and Mr Ralph van Hoorn from Radboud University Medical Center in the Netherlands led a Skype meeting to discuss patient preferences and factors influencing treatments with a mixed group of lay and professional stakeholders. Mr Jake Burns and Miss Stephanie Polus from Ludwig Maximilians University in Munich, Germany have held telephone meetings with professionals about effectiveness and applicability assessments respectively. Two PPI representatives took part with ten professionals from the end of life care commissioning group in a final mock decision making meeting on the 18th May which was led by Mr Philip Wahlster from the University of Bremen and Louise Brereton, ScHARR. The project comes to a close in December 2015 and we look forward to sharing what we have learned.
More information on the project, including the progress of our work can be found on the project website: www.integrate-hta.eu. In addition, we inform interested stakeholders via newsletters (twice a year). All editions of the newsletters are also available on our project website (www.integrate-hta.eu/downloads). If you are interested in receiving our newsletter by e-mail, or if you wish to receive more information please contact us at firstname.lastname@example.org or visit our website.
The project is co-funded by the European Union under the Seventh Framework Programme (FP7-Health-2012-Innovation) under grant agreement number 306141.
Contributed by Louise Brereton, Liddy Goyder and Wija Oortwijn on behalf of the INTEGRATE-HTA project team.